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Griffin's Fearless Fight
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A medical fund forGriffin Fitzgerald

$525 given of $20,000 goal

Griffin's Fearless Fight

Started by: Alicejane DePhillippo

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Sarah and Trevor were overwhelmed with joy when they found out they were pregnant with a beautiful baby boy, who they decided to name Griffin. The first trimester went smoothly and Griffin’s development seemed to be right on track. However, life came to a screeching halt at their 20-week check-up appointment.

During that appointment the Doctor informed them that they had found an abnormality on the ultrasound called Congenital Diaphragmatic Hernia (CDH). Congenital Diaphragmatic Hernia (CDH) occurs when the diaphragm muscle – the muscle that separates the chest from the abdomen – fails to close during prenatal development, and the contents from the abdomen (stomach, intestines and/or liver) migrate into the chest through this hole.

When the abdominal organs are in the chest, there is limited room for the lungs to grow. This prevents the lungs from developing normally, resulting in pulmonary hypoplasia (or underdeveloped lungs). This can cause reduced blood flow to the lungs and pulmonary hypertension (high blood pressure in the pulmonary circulation), as well as asthma, gastrointestinal reflux, feeding disorders and developmental delays. CDH can occur on the left side, right side or, very rarely, on both sides.

Without experienced and professional care, it is impossible for a baby with CDH to survive. As you can imagine this has left both loving parents in absolute uncertainty day after day. Fortunately, Sarah and Trevor have found a place called, Children’s Hospital of Philadelphia (CHOP), that specializes in CDH and are currently in their care. Being in the care of CHOP required Sarah and Trevor to move to Philadelphia a month prior to Griffin’s birth and stay there for another four months after his birth on March 29th 2019.

During those months Griffin had surgery on April 11th, he had a Diaphragmatic Hernia Repair with a mesh patch and a ladds procedure. The defect was larger than expected and that is why they had to use the mesh patch. Griffin was in the NICU for 122 days. Currently his medical issues are reflux, pulmonary hypoplasia requiring oxygen, feeding intolerance requiring an NG tube, and working to meet developmental milestones.

This condition is not only life – threatening and undetermined, but it is also expensive and requires long term medical care. Griffin’s medical diagnosis also does not allow him to be sent daycare. What would be a small bug for you or I could land him back into the hospital. Your contribution will go a long way helping baby Griffin, Sarah and Trevor.

Please take the time to review the link to Congenital Diaphragmatic Hernia and make a donation to our campaign for Griffin’s Fearless Fight. Your contribution will help with costs that Sarah and Trevor will encounter during this difficult and uncertain time.

Thank you

 <3

CONGENITAL DIAPHRAGMATIC HERNIA (CDH):

https://www.chop.edu/conditions-diseases/congenital-diaphragmatic-hernia-cdh

Latest Update

Posted by Alicejane

August 31 at 1:47pm

First Last (Not First? Sign Out)

Posted by Alicejane

August 31 at 1:47pm

First Last (Not First? Sign Out)

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7 Supporters

  • First Last (Not First? Sign Out)

  • Marjorie lois Newman1 week ago Best wishes.
  • Anonymous2 weeks ago
  • Anonymous2 weeks ago
  • Kristen Smith2 weeks ago Sarah, My thoughts and prayers are with you and your family, Griffin is beautiful, you can do this ♥️
  • Albert Decker2 weeks ago
  • Sarahann Koenig3 weeks ago Along with prayers I wanted to personally help. Best wishes.
  • DePhillippo & Garman Family4 weeks ago We love you guys ❤️