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A plumfund forIvory Rose Carl
Ivory Rose Carl and Family
Started by: Jen Diggs
Ivory Rose Carl and Family
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https://www.facebook.com/groups/311244526107552/
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If you have problems, Please let me know jendiggs13@gmail.com
Sweet Ivory Rose is facing some major challenges after her diagnosis of Rasmussen's Encephalitis, January 29th, 2019. This is a rare auto-immune brain disorder that causes life altering seizures. Chara, Geoffrey and Ivory will be facing a long, hard journey ahead and will need your love and support.
Ivory will under go major brain surgery to remove the affected side of her brain on February 20th,2019.
Donations will help their future well being as well as medical costs. There is uncertainty about the prognosis. They will face many challenges in the future, with the possibility of surgery and extensive rehabilitation. Please consider helping the Carl family though this very difficult time. This will be a long road. Please share with your friends and family. All the love and support is welcomed.
https://www.plumfund.com/fundraising/thecarlfamily
Latest Update
This is Rachel. Ivory lights up when she walks in the room. Rachel has given Ivory her speech back. Ivory immediately connected with her and Rachel with Ivory. We thank you Rachel for your patience, perseverance, and above all always believing in our warrior princess.
Posted by Jen
April 4 at 8:22pm
Last session with Marla. Marla is a wonderful OT that helped Ivory with a lot of tools that she will take with her. Prominently self care and learning how to get dressed again mostly by herself. Thank you Marla for all your amazing care for our warrior princess.
Posted by Jen
April 4 at 8:22pm
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Great news! Ivory is graduating from bootcamp! We are being discharged April 5th! We will be headed back home Sunday on the 7th. We feel the love from you all and are so thankful to have you in our lives!
Posted by Jen
April 4 at 4:30am
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The best news came today...Ivory's therapy doctors feel that because she is progressing so well she would greatly benefit from another week of intensive inpatient therapies! We were schedule to be discharged next Friday the 29th, we will now be discharged on Friday April 5th. We feel blessed that they are so dedicated to her rehabilitation and want to see what more they can get her to do! Way to blow them away Ivory girl!
Posted by Jen
March 22 at 1:00am
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March 18th- Haven't shared an update in a day or two. Ivory has been out enjoying the Seattle weather, visiting family and buying new shoes that fit her customized butterfly leg brace (she designed it herself). Her PT therapist put lifts in them (soon to be orthotics) and she was walking up a storm today! Go Ivory Go! Video on Facebook "Ivory Rose carl"
Posted by Jen
March 20 at 11:33pm
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Looking who's standing all by herself!?! Warrior Princess! 3/13/19
Posted by Jen
March 14 at 8:20pm
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Busy Monday! Multiple therapy sessions and a visit to the inpatient school classroom. They already have her desk and cubby set up. She officially starts tomorrow beginning with music class! For now she sleeps peacefully...good night our warrior princess.
Posted by Jen
March 12 at 3:38am
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Sarina Mershon — 5 years ago
She is so precious! I hope music class is super fun for her..
March 7th- And she is off...fun sticker scavenger hunt this morning! Ivory is stoked to get the trike back out this weekend to cruise the halls. Watch out folks she is mobile!
Posted by Jen
March 9 at 10:20pm
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March 7th- We had our first team meeting with all the specialized providers that are here to support Ivory's recovery. We couldn't feel more thankful for an amazing group of world class experts. We will know more next week but it looks like the goal is to have Ivory graduated from inpatient rehab to outpatient in 3 to 4 weeks! Our warrior princess showed us again today how determined she is to blow this joint! Kickin ass!
Posted by Jen
March 8 at 5:42am
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Eileen Alexander — 5 years ago
How awesome God has supplied Ivory with amazing experts to orchestrate her care...Pls know you all remain in our hearts and prayers. Feel God's strength and peace. Love, Eileen
Please take the time to join the facebook group. there are many more videos you can watch to see Ivory's progress! https://www.facebook.com/groups/311244526107552/
Posted by Jen
March 7 at 6:39pm
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Posted by Jen
March 7 at 6:35pm
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March 6th- Ivory was officially admitted to rehabilitation status today. Wow talk about intense therapy. It is the best thing for her and she is completely wiped out tonight! During the day she received a couple care packages. Thank you Tara and Robert and Mrs. Stephens. Perfect timing for a little distraction during a tough 1st day!
Posted by Jen
March 7 at 6:35pm
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March 4th - Lots of work and then a very fun filled day of Aunts and Cousins! Thank you Lisa Ammerman, Desiree Ammerman, Jaiden Matteson, Riyan, Janell, and the infamous Patrick Murphy! We love you all!
Posted by Jen
March 7 at 6:34pm
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More from March 4th
Posted by Jen
March 7 at 6:29pm
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March 5th-
Posted by Jen
March 7 at 6:28pm
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March 5th- Our amazing friend Brian Diggs made these beautiful wood frames for Ivory. We are now in our permanent rehabilitation room and put up some decorations today!
Posted by Jen
March 7 at 6:28pm
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March 5th-
Posted by Jen
March 7 at 6:27pm
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March 5th-Enjoying dinner while sending out peace and love to all! Thank you Aunt Patty for the yummy cookies and visit!
Posted by Jen
March 7 at 6:26pm
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March 4th
Posted by Jen
March 7 at 6:24pm
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March 4th
Posted by Jen
March 7 at 6:22pm
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March 4th
Posted by Jen
March 7 at 6:21pm
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March 3rd
Posted by Jen
March 5 at 3:45am
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March 3rd- Great relaxing Sunday. Not sure why I cant tag her visitors today but a special call out to Andrea, Ryan, Ali and Frank and everyone lovin on our warrior princess from a far. We love you all. Tomorrow Ivory will continue her intensive therapy working to bring the right side of her body back online and develop brain pathways that support language and speech.
Posted by Jen
March 5 at 3:44am
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Eileen Alexander — 5 years ago
We are so thankful for Ivory's miraculous strides. I know God is with her every step of the way. Praying for strength and comfort for Chara and Jeoff. Hugs to each of you. Eden and Ike love Ivory soooo much...We all do...Gratefully, Eileen
March 1st- I can not upload videos onto plumfund. If you would like to see Ivory's progress video's, please request an invitation to join Ivory Rose Carl's facebook group. https://www.facebook.com/groups/311244526107552/
Posted by Jen
March 5 at 3:43am
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March 2nd
Posted by Jen
March 5 at 3:40am
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March 2nd
Posted by Jen
March 5 at 3:38am
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March 2nd: Ivory worked so hard in PT that we took her for a roll down to Starbucks for a cake pop and then over to the play area for some Saturday fun! Go Ivory Go (insert drumb beat) Go Ivory Go!!!
Posted by Jen
March 5 at 3:38am
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Breakfast, shower, teeth brushed, sitting in Daddy's lap for a mid morning nap = heaven.
Posted by Jen
February 28 at 7:48pm
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Gina Costellini — 5 years ago
Yes it does 😇😇😇
from Chara yesterday. Our amazing princess is 1 week post-op today. With the help of PT/OT she sat on the edge of her bed for over 2 minutes on her own. The highlight of her day was getting in the shower. She smiled as the water ran down her body! The rest of the day was spent resting.
Posted by Jen
February 28 at 4:31pm
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Today the neurosurgery team came by for their morning rounds and said that Ivory is exceeding all their expectations! She had her drain tube taken out this afternoon during a special visit from her Aunt Lisa and Cousin Desiree. They brought with them a sparkly unicorn balloon which she immediately noticed. Oh how she loves sparkles. Another favorite song of hers, "Shine bright like a diamond". My darling you are the shining light that sparkles brighter than all diamonds combined.
Posted by Jen
February 26 at 11:22pm
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Gina Costellini — 5 years ago
Gods prayers have been answered so happy for the continuous wonderful news Love you guys
Big day for our girl. Out of bed and on to Daddy's lap she goes! Listening to REO speedwagon "Keep on loving you" , snuggle buggin and not wanting to get back in bed. Precious and miraculous all in the same moment. Heart pounding pride!
Posted by Jen
February 25 at 8:37pm
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Ivory is having a great day. Just had PT and sat up so good. We worked her legs, neck and tummy muscles while giving her a sponge bath...oh that feels good. She powered through it, gave us some smiles and we could not be more proud of her will to gain mobility again on her right side. She uses her left hand to move her right hand which is exactly what she needs to be doing at this point. She is even giving us some attitude!
Posted by Jen
February 24 at 8:18pm
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Ivory is taking the day to rest and sleep. We love all the amazing love and support that surrounds her. She is blowing you all a kiss!
Posted by Jen
February 23 at 10:14pm
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We are moving on out of ICU! Ivory's goals for the day: eat, drink, sleep and all therapies (OT,PT,Speech). She is doing better than expected. Rather than being woken up every hour she has been moved to 4 with neuro checks in between. She is much more aware of what's going on so with that comes our devotion to keeping her spirit alive while managing her pain. Go Ivory Rose go. You got this baby girl! We walk in the power of your strength to guide you and clear the path to your accomplishments. We love you darling.
Posted by Jen
February 22 at 7:19pm
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Please sign up for notifications to follow Ivory's progress on Facebook. I will continue to post on plumfund as well, but it will not updated each day until the end of each evening. https://www.facebook.com/groups/311244526107552/ and ask for an invitation to view. If you have problems, Please let me know jendiggs13@gmail.com
Posted by Jen
February 22 at 6:55am
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@ 4 PM; Busy day for Ivory Rose. She is talking a little more and PT / OT had her sit up. She did great! You go girl!
Posted by Jen
February 22 at 12:04am
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Lauren Anderson — 5 years ago
Yes! This is great news! Oh she just melts my heart 😀
AT 2 PM today- Chara posted "Ivory Rose had a good first night post-op. All is going as expected and she is impressing the drs already. She said a few words, has great vitals, is resting calmly and will have an MRI this afternoon to check on inflammation and drain tube. Standard procedure after hemispherectomy. We are still in ICU and the team here is amazing. She is watching Moana now in between naps.With all the love and gratitude we appreciate everyone's support and love for Ivory."
Posted by Jen
February 22 at 12:03am
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correction: The goal is to have her wake up and breathe without the tube by TONIGHT.
Posted by Jen
February 20 at 11:21pm
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Relieving news, Ivory is out of surgery and everything went very well. This procedure was no doubt the best step for Ivory. The disease was far worse than previously seen on the scans. Initially, she won't be able to move the right side of her body. She is being moved to the PACU shortly. Then to the ICU. The goal is to have her wake up and have the breathing tube removed. I will post more when I hear more from Chara- Love Jen PLEASE visit her facebook page and follow "Ivory Rose Carl"
Posted by Jen
February 20 at 11:17pm
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What an amazing and bittersweet weekend. Our good friend Jen came for a visit and she brought the most amazing surprise; Ivory's best friend Hailey! Those two had such a fun weekend. Ivory was also surprised by 3 personal videos from 7 different NFL players, 6 from the New england patriots and 1 from the New york Giants! We spent the weekend packing for our move to Seattle. Geoffrey and I took the time to live in our moment, love on our doggies, kitties and say goodbye to this sanctuary we call home. Heading East will be very difficult, but we face this journey with the strength and love from our friends and family. We couldn't be more grateful for all of the support and donations that we have received. We love you all. Jen is creating a FB page for Ivory. Please follow the link below; https://www.facebook.com/Ivory-Rose-Carl-2320558374898661/
Posted by Jen
February 17 at 8:04pm
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We want to thank everyone for their generous donations and kind words of support. The outreach of love and prayers has been amazing. We could not be venturing down this journey with our darling Ivory Rose without the love and support of each and every one of you. We will be heading to Seattle this upcoming Sunday. They will have her in a functional MRI on the 19th and then will be preparing her for surgery on the 20th. From there she will go into ICU for 2 to 3 days and from there will be transferred into the regular care area. They will begin therapy with her almost immediately. We may not know how many functions she will have on the right side of her body or what language skills will be intact for several weeks/months. Once we are out of the ICU we will provide another update. Love to you all. Geoffrey and Chara Good article to read: http://www.scholastic.com/browse/article.jsp?id=4824&fbclid=IwAR3p94ySnEN-5TGNQg_7jI2YXisIKDMlnjqbyGDFbkNJV8_rYaoJ5LyrPJU
Posted by Jen
February 13 at 1:55am
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Gina Costellini — 5 years ago
Geoffrey and fam I pray everything will go as god planned My heart and soul is with you , Ivory and Chara with god Speed love u
Gina Costellini — 5 years ago
Fod bless geoffryand family She will wear the right shoes 👠 Love you
99 Supporters
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- Christine Stewart5 years ago
- Michelle Smith5 years ago Best wishes. Praying for you and your family .
- Jennifer Garcia5 years ago Best wishes.
- Stacy Bufmack5 years ago Praying for you on this journey
- Kathy Eaton5 years ago Best wishes.
- Amy F5 years ago ❤️
- Gwen Carley Keliikoa5 years ago Best wishes.
- sarina helton5 years ago
- Eileen Alexander5 years ago Awesome, Ivory.Love you. I know you are working hard. God bless you and your Mom & Dad...You stay in our hearts and prayers
- Nikki Jacobsen5 years ago What an inspiring little girl you are Ivory!
- Show 89 more supporters
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Julie Novak — 4 years ago
What a beautiful little princess warrior.many prayers going out to Ivory .and her family. God bless you.❤❤❤